Supporting the Putney Gumps
In 2020, the Putney Gumps, aka Adam and Johnnie, are fund-raising for causes close to their heart; Down's Syndrome Association, and The Cystic Fibrosis Trust.
Max, Johnnie and Judie's son, is a fun, energetic and happy 16 year old with Downs. Last year he was diagnosed with Type 1 Diabetes, a new challenge which has brought a fast learning curve for the Wraiths. The DSA has provided invaluable support over the years.
Maddie Turner, the 15 year old daughter of close family friends to the Constables, is an inspiration to those living with Cystic Fibrosis; and the CFT is leading the fight to find ways to make every day less of a struggle.
Read on to find out more about each charity.
Logo © Cystic Fibrosis Trust 2017. Registered as a charity in England and Wales (1079049)
Cystic fibrosis (CF) is a genetic condition affecting more than 10,400 people in the UK. You are born with CF and cannot catch it later in life, but 1 in 25 of us carries the faulty gene that causes it, usually without knowing.
CF can affect multiple organs in the body, most notably the lungs and the pancreas. The build-up of mucus in the lungs causes chronic infections, meaning that people with cystic fibrosis struggle with reduced lung function and have to spend hours doing physiotherapy and taking nebulised treatments each day. Exacerbations (a sudden worsening of health, often owing to infection) can lead to frequent hospitalisation for weeks at a time, interfering with work and home life. Cystic fibrosis can cause the pancreas to become blocked with mucus, and when this happens enzymes required for digesting food cannot reach the stomach. People with CF often need to take more than 50 tablets a day to help digest food and keep respiratory symptoms in check.
The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis for everyone affected by the condition. Since we started in 1964 we have dedicated ourselves to promoting excellence in research and clinical care, as well as providing practical support and advice to people with CF and their families. Our mission is to create a world where being born with CF no longer means a life-long struggle, when everyone living with the condition will be able to look forward to a long, healthy life.
We are the only organisation in this country focusing solely on all aspects of living successfully with Down’s syndrome. Since 1970, we have grown from being a local parent support group into a national charity with over 20,000 members, a national office in Teddington, Middlesex and an office in Northern Ireland. Our mission is to help people with Down's Syndrome live full and rewarding lives.
We aim to provide information about all aspects of living with Down's Syndrome specialist advisers on benefits, education, health and social care; advise new parents or anyone with questions; promote and facilitate information exchange between members through various groups; advise on employment for people with Down’s syndrome. We give key messages to the media, public and professionals; influence policy making; responsible for external publications and help to provide training throughout the UK for members, professionals and carers