Supporting the Putney Gumps
The Putney Gumps, aka Adam and Johnnie, are fund-raising for causes close to their heart; Down's Syndrome Association, Juvenile Diabetes Research Foundation, The Cystic Fibrosis Trust, and Great Ormond Street Hospital.
Max, Johnnie and Judie's son, is a fun, energetic and happy 12 year old with Downs. Last year he was diagnosed with Type 1 Diabetes, a new challenge which has brought a fast learning curve for the Wraiths. The DSA has provided invaluable support over the years, and JDRF continues to be at the forefront of making the lives of those with Type 1 easier.
Harriet, Adam and Lucy's daughter had life-saving heart surgery at Great Ormond Street as a baby, having been born with Total Anomalous Pulmonary Venous Drainage, and now leads a full and bouncy life.
Maddie Turner, the 12 year old daughter of close family friends to the Constables, is an inspiration to those living with Cystic Fibrosis; and the CFT is leading the fight to find ways to make every day less of a struggle.
Read on to find out more about each charity.
Logo © Cystic Fibrosis Trust 2017. Registered as a charity in England and Wales (1079049)
Cystic fibrosis (CF) is a genetic condition affecting more than 10,400 people in the UK. You are born with CF and cannot catch it later in life, but 1 in 25 of us carries the faulty gene that causes it, usually without knowing.
CF can affect multiple organs in the body, most notably the lungs and the pancreas. The build-up of mucus in the lungs causes chronic infections, meaning that people with cystic fibrosis struggle with reduced lung function and have to spend hours doing physiotherapy and taking nebulised treatments each day. Exacerbations (a sudden worsening of health, often owing to infection) can lead to frequent hospitalisation for weeks at a time, interfering with work and home life. Cystic fibrosis can cause the pancreas to become blocked with mucus, and when this happens enzymes required for digesting food cannot reach the stomach. People with CF often need to take more than 50 tablets a day to help digest food and keep respiratory symptoms in check.
The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis for everyone affected by the condition. Since we started in 1964 we have dedicated ourselves to promoting excellence in research and clinical care, as well as providing practical support and advice to people with CF and their families. Our mission is to create a world where being born with CF no longer means a life-long struggle, when everyone living with the condition will be able to look forward to a long, healthy life.
We are the only organisation in this country focusing solely on all aspects of living successfully with Down’s syndrome. Since 1970, we have grown from being a local parent support group into a national charity with over 20,000 members, a national office in Teddington, Middlesex and an office in Northern Ireland. Our mission is to help people with Down's Syndrome live full and rewarding lives.
We aim to provide information about all aspects of living with Down's Syndrome specialist advisers on benefits, education, health and social care; advise new parents or anyone with questions; promote and facilitate information exchange between members through various groups; advise on employment for people with Down’s syndrome. We give key messages to the media, public and professionals; influence policy making; responsible for external publications and help to provide training throughout the UK for members, professionals and carers
Type 1 diabetes is an autoimmune disease that strikes both children and adults suddenly. It has nothing to do with diet or lifestyle. There is nothing you can do to prevent it. And, at present, there is no cure.
In T1D, your pancreas stops producing insulin—a hormone the body needs to get energy from food. This means a process your body does naturally and automatically becomes something that now requires your daily attention and manual intervention. If you have T1D, you must constantly monitor your blood-sugar level, inject or infuse insulin through a pump, and carefully balance these insulin doses with your eating and activity throughout the day and night.
However, insulin is not a cure for diabetes. Even with the most vigilant disease management, a significant portion of your day will be spent with either high or low blood-sugar levels. These fluctuations place people with T1D at risk for potentially life-threatening hypoglycemic and hyperglycemic episodes as well as devastating long-term complications such as kidney failure, heart attack, stroke, blindness and amputation.
JDRF has led the search for a cure for T1D since our founding in 1970. In those days, people commonly called the disease “juvenile diabetes” because it was frequently diagnosed in, and strongly associated with, young children. Our organization began as the Juvenile Diabetes Foundation. Later, to emphasize exactly how we planned to end the disease, we added a word and became the Juvenile Diabetes Research Foundation.Today, we know an equal number of children and adults are diagnosed every day - approximately 110 people per day. Thanks to better therapies - which JDRF funding has been instrumental in developing and making available - people with T1D live longer and stay healthier while they await the cure.
The mission at Great Ormond Street Hospital Children’s Charity is to enhance Great Ormond Street Hospital’s (GOSH) ability to transform the health and wellbeing of children and young people, giving them the best chance to fulfil their potential.
GOSH Charity provide funds to four key areas in order to support the hospital.
To help modernise and redevelop GOSH by replacing and expanding outdated clinical facilities and accommodation, enabling the hospital to treat more children in modern environments.
To fund child, family and staff support projects to help improve the experience of patients and their families, enable clinical innovation and provide important support for the hospital’s dedicated staff.
To provide funding for vital research to pioneer new and kinder treatments for rare and complex conditions. Over the next five years we will increase our investment, spending over £50 million.
To ensure that the hospital can harness the latest technologies by investing in new equipment and related capital projects.